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Caregiving – Making Time for You

October 22, 2015 Leave a comment

Rest and self-care are so important. When you take time to replenish your spirit, it allows you to serve others from the overflow. You cannot serve from an empty vessel. ~ Eleanor Brownn

Caring for a loved one who is ill or frail can be incredibly rewarding. It can also be one of the toughest things you’ll ever do in your life.

Senior man sitting on a wheelchair with caregiver

Caring for someone is incredibly fulfilling, but it can take a toll. Be good to yourself! 

Preparing meals, giving medicines, arranging medical care, paying bills—tasks like these take a lot of time and energy. So it’s no wonder that caregivers often give short shrift to themselves—there’s not much room on that daily must-do list for anything personal.

Sound familiar? If you find yourself nodding yes, then repeat this caregiving mantra: You can’t do a good job of caring for someone else if you don’t take care of yourself.

Show yourself some humankindness

Here are some suggestions on how to carve out some much-needed—and deserved—me time:

Accept and ask for help. Gladly say yes to offers of help so that you can do something for yourself, whether that’s seeing your own doctor or recharging with a walk. And don’t hesitate to be specific about what might help you most. It’s OK to say, for example, “Can you stay with Mom for two hours this Wednesday so I can see my dentist?”

Seek out community services. These services—such as nursing care, adult day care, and home delivered meals—can help lighten your load. To find out what’s available, call the Nevada Aging and Disability Services at 702.486.3545 or visit http://www.adsd.nv.gov.

Make your own health a priority. Caregivers are often so busy tending to others that they neglect their own health—which helps explain why they’re more likely than other adults to develop serious health problems. So don’t skip checkups, screening tests, or necessary medical care. Learn self-care tools at our Powerful Tools for Caregivers Workshop (call 702.616.4900 for information or to register).

And do your very best to eat well, exercise regularly, and get enough shut-eye. Some days that may be easier than others. Do what you can—and remind yourself why it’s important for you and your loved ones.

Sources: Family Caregiver Alliance; Office on Women’s Health

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Meet the Unstoppable Greg Sutter

Gregory Sutter Blog

Greg today – climbing ladders was part of his “Prosthetic Boot Camp” therapy at the Rehabilitation Institute of Nevada at Rose de Lima.

Born and raised in Milwaukee, Wisconsin, Greg Sutter moved to Las Vegas in early 2002. A firefighter from 1989 to 1995, he took a deferred retirement to run a landscaping and lawn service business he had started while still fighting fires. Then in 1996, Greg joined FedEx Express® (FedEx). He worked mornings six days a week at his landscaping business then afternoons five days a week at FedEx. He ultimately transferred to Las Vegas with FedEx.

Greg Firetruck

While living in Wisconsin, Greg was a firefighter from 1989-1995.

“I fell in love with Las Vegas back in the early ‘80s,” says Greg. “I love its openness, climate, and the nearby mountains.” While living in southern Nevada, he has traveled extensively, accumulating about 85,000 miles touring the western and mid-western parts of the country on his 2000 Harley Davidson Springer Softail. “I’ve visited nearly every national park in the Western U.S.,” says Greg.

But Greg’s days of Harley riding came to an abrupt halt in September 2014 shortly after returning from a nine-day solo ride to Glacier National Park. “I was in relatively good health for a 51-year-old guy,” says Greg. “I took a low dose of blood pressure medicine but had stopped taking it for 6-7 weeks.” After suffering symptoms he thought might indicate heart trouble, he went immediately to his primary care physician who did EKGs and blood tests. The test results indicated an immediate need for him to go to the emergency room because his troponin levels were sky high. (Troponin is a combination of three proteins that are integral to cardiac muscle contraction).

“I had six people surrounding me within three minutes of arriving at the Rose de Lima emergency room,” says Greg. “They did a variety of tests, but everything kept coming back normal.” Even the cardio cath showed that Greg’s coronary arteries did not have any calcification or plaque buildup. Ultimately, a 3D arterial CT scan was done, which showed that his right coronary artery had grown between his pulmonary artery and his aorta. He was diagnosed with a coronary artery anomaly, a condition commonly heard of in elite athletes who die suddenly during games or practices.

Greg Park Blog

Greg’s love of riding has taken him to nearly every national park in the western U.S.

Dr. Robert Wiencek, cardiothoracic surgeon “extraordinaire” (per Greg) with St. Rose|Stanford Clinics, performed coronary bypass surgery on Greg, which was a complete success, and he was up and walking less than 24 hours later.

Five days later, Greg’s condition suddenly changed. His hands and feet became swollen and discolored, so he was placed into an induced coma and ventilated for six days while doctors ran tests. Greg was diagnosed with Disseminating Intravascular Coagulation (DIC), which has an over 50 percent mortality rate. DIC is the body’s response to massive hemorrhage, but Greg’s body was not, in fact, hemorrhaging. Coagulated blood was being pushed into his extremities, so physicians had to draw off that blood and replace it with fresh blood, along with blood thinners, to prevent Greg from dying.

After recuperating at the San Martín Campus’ ICU for 10 days then spending an additional 13 days there, he was transferred to the Rehabilitation Institute of Henderson at the Rose de Lima Campus where he rebuilt muscle and regained his strength. Greg was discharged with gangrene in two of his fingers and both of his feet, which were necrotic (the tissue had died).

Greg and his doctors decided together that amputation – below the knee on both legs and removal of both fingers – was the best course of action. But surgery could not be scheduled for nearly two months because they had to wait for the gangrene to stabilize (a line of demarcation would form to show the parts of his hands and feet that were alive and those that were not). He recovered at home with daily wound care, physical therapy, and nursing care.

Greg is a licensed falconer and was “the custodian and grateful observer” of Lucidity, a 15-year-old female red-tailed hawk, until she passed away in June 2015.

Greg is a licensed falconer and was “the custodian and grateful observer” of Lucidity, a 15-year-old female red-tailed hawk, until she passed away in June 2015.

Greg’s amputations took place at Rose de Lima. He spent 24 hours in the intermediate care unit followed by 21 days as an amputee patient in the Rehabilitation Institute where therapists helped him get ready to go home in a wheelchair. Greg healed at home for eight weeks then was readmitted to the Rehabilitation Institute for the third time for intensive prosthetic therapy and training – or what he jokingly refers to as Prosthetic Boot Camp.

“The rehab team custom fit a therapy program designed specifically for me,” he says. “Knowing that I’m a FedEx driver, the team had me climbing 8 foot step ladders and doing stairs from the first to the fourth floor and back nonstop. Initially, I had to use my upper body strength, then I learned to shift the emphasis to my lower body by using my new prosthetics.”

Greg’s favorite form of physical therapy was what is now called the “Sutter Hill Challenge” because he challenged his physical therapists to walk the hill with him. During his first stay, Greg had to stop 4-5 times before making it to the top. On his second visit, he conquered the hill while in a wheelchair. At one point, his therapist, Stephanie, said, “let’s go do the hill.” Greg’s response was “If I do it, you do it,” and she said, “You’re on. I accept your challenge.” That wheelchair challenge was closely followed by another with his therapist, Kim, who also succeeded the first time. The therapists still use the Sutter Hill Challenge with their patients.

Greg - shown here in the desert with Lucidity.

Greg – shown here in the desert with Lucidity.

Throughout his treatment, Greg has stayed positive. He feels his journey unfolded because God was preparing him for what was happening. “I had time to prepare emotionally because I was kept fully informed about what was coming by my medical teams,” he says. “I was at peace with everything until the morning before my amputations. I lay in bed very anxious and began to pray, and I was overcome with a calm, peaceful message that everything would be okay. I haven’t had an anxious moment since.”

“Greg has an attitude of empowerment that is contagious,” says Dr. Tony Chin, physiatrist, and Medical Director of the Rehabilitation Institute. “He participated at a level that was encouraging and inspiring to both the patients and the staff … our nurses and therapists would get daily hugs and ‘doses of Greg’ before starting their shifts. God’s light literally seemed to shine through him.”

Greg is determined to keep climbing!

Greg is determined to keep climbing!

Greg now has a customized set of prosthetics that he is becoming more comfortable with. “They reflect my ‘fiery’ personality,” he says. “If I have to wear them, I figure I might as well have some fun with it.” He’s even been to Christian music festivals where the musicians have signed his prosthetics, and “they spur some interesting conversations almost everywhere I go,” he laughs.

And his Harley? Greg met his goal of being back on his bike with the wind in his face in late August. In fact, Greg went on his first overnight ride – he and his cousin rode to the North Rim in mid-September – on the one year anniversary of his experience starting.

If you would like to communicate with Greg, e-mail him at reach@dignityhealth.org.

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